Immune Dysregulation

A Mouse Model for the Immune Dysregulation Subtype of Autism « Lisa Ackerman – Real Help Now.

I can’t really tell you how much I wish this were more well-known. I know that I can’t make anyone else really feel the same way, either. Not in the meaningful way I’d like, at least. I don’t think anyone can feel it properly unless they’ve been there.

The medical community might think it’s not worth exploring but try asking the mom that had a miscarriage two months before getting pregnant with her ASD son. The one whose miscarried pregnancy was completely not right in every way from the very start. The pregnancy that was likely miscarried for some sort of immune dysfunction.

The bad pregnancy that probably affected the pregnancy immediately following it two months later.

Whatever happened to my immune system happened to him. He was born with those immune problems and spent the first three years of his like always sick. Vaccines (especially the Hep B) played such a large role in keeping him sick and making him sicker. Each shot make him slip further away.

I find myself having many of the same issues but I’m older, I’m not developing and learning and becoming a person. I already know how to behave appropriately so when these issues arise in me, I already know how to handle them, or at least control them. I already know it’s not normal.

He was an infant with no prior knowledge. He was a brand new being and all these things were imprinting in his brain as being normal.

And now his immune system is shot and his viral titers are crazy. He will not likely ever be able to stop taking antivirals and antifungals. It’s just an unfortunate reality. His recovery is completely reliant upon them. Without them, his ASD symptoms return. It’s been proven over and over in him. Take antivirals and symptoms disappear. Remove antivirals and symptoms return. We’ve replicated this scenario every year.

I’m not sure how much more proof anyone could need. You don’t even have to believe that he has immune dysfunction. All you need to do is believe that antivirals clearly improve his ASD status. He goes from mostly recovered while on it to not at all recovered when off. We can do this over and over and over and over. There’s obviously some kind of correlation that should give any doctor pause.

And yet I can’t get many western medical professionals to “get it” and understand autism is more than a set of psychological symptoms. We’re fortunate that we’ve got a wonderful ped and a wonderful DAN doctor. But it took us a long time to find a doctor that looked at the results instead of towing the party line.

Medicine should be progressive. We should be open to learning, not pressured by organizations and companies with an agenda.

These are the types of studies we need more doctors to read. We need more doctors that will employ critical thinking skills instead of looking up the same tired answers in a medical book or rehashing the same biased information from what has been proven many times over to be biased journals.

Maternal (possibly even paternal) immune dysregulation should matter. Immune dysregulation as a subtype of ASD should matter.

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Kansas to Pregnant Women: “A Little Lie from Your Doctor Won’t Hurt You”

Kansas to Pregnant Women: “A Little Lie from Your Doctor Won’t Hurt You”.

How much longer are we going to pretend the medical community doesn’t have an agenda?

I don’t trust doctors. Some would call me paranoid. Some would say I’m overreacting. I wonder how much longer they’ll be able to hold on to that theory.

Legislators, supposed christians and state leaders, have sent a message. They don’t give a shit what you think. They don’t give a shit about the AMA. They don’t give a shit about ethics. And they sure as hell don’t give a shit if you trust your doctor.

It’s perfectly okay and encouraged to lie to patients.

Do you really believe it stops there?

This touches on many topics. I won’t even touch the religion in politics or the abortion issue as this is an autism blog but understand the entirety of my opinions for all three results in no one ever cares until it happens to them.

Pro-lifers believe abortion should be illegal but would they be okay when it gets to the point of arranged marriages? Not all pro-lifers believe that they shouldn’t be able to use birth control. Not every religious person will be okay with a doctor lying to them or others. Not every religious person will be okay with their bosses asking about their sex life.

How irrational are we now? No one cares until it happens to them. No one cares about our concerns or our children. No one wants to believe that this type of thing could actually happen in this country. The medical community couldn’t really be in the pockets of big pharma or the CDC. Politicians and money can’t really be what’s going on here. We can’t seriously be more concerned with reputations and appearance than the actual health of our children. There couldn’t possibly be an agenda.

Do you care yet?

It’s hard to believe I can still get angry even when I’m not surprised at all.

 

Watch this.

Such a beautiful video from a father.

I don’t know his feelings on biomed. I don’t really care, either. He’s a parent of a child with autism; we’re in the same club.

I feel like his blog is important because there aren’t a lot of places for fathers to go. Men handle this differently with very little support or outlets. If you’re a father looking for a little help outside, maybe this is a good place to start. You could certainly do worse.

I Promise You – AGE OF AUTISM

I Promise You – AGE OF AUTISM.

Just in case some people don’t realize what happens to the parents of special needs kids. This is the reality, folks. Choosing not to be bullied, hurt, lied to, manipulated, or cheated out of helping our kids makes us the bad guys.

It isn’t enough to be ridiculed for standing up for our children. We aren’t allowed to simply love them and do what any parent would do for their children. We have to defend ourselves for it, too.

Chew on why that would be.

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