Wow. Absolutely incredible.
25 Apr 2012 Leave a comment
Yes. I said it. Be angry. Be outraged.
23 Apr 2012 Leave a comment
in And they call us crazy, Antidepressants, Hypocrites and Idiots, In The News, New Research and Science, Prescription therapies Tags: antidepressants, autism depression, autism treatment, Health, Mental Health, research, science, SSRIs
It’s not often I post something from WebMD. But here it is, ya’ll! Publication bias. Something us ASD families have been talking about for a very long time.
It’s funny because this is a big part of our argument and we get told over and over that it’s simply not true. There is no bias and that if a study is done well, it should be accepted by journal gatekeepers and will find a home in journal. We’re told that the studies we cite were simply poorly done and not up to proper standards.
Yet here it is – they even have a word for it: publication bias.
Having gone the route of SSRIs in our early days, I know this is true. I know that the benefits of antidepressants are severely overstated and the overprescription of such drugs to 3 and 4 year olds is flat out dangerous.
Trust your doctor at your own risk. Healthy living isn’t rocket science. It’s not hard to read the material and learn and decide for yourself if something makes sense to you. There are risks with any medicine and we all take them. We know that some cause liver failure and some cause strokes and so on. But we also know that we take that risk ourselves as adults.
These are our children. They deserve more than lip service. They deserve every parent’s full knowledge of the risks and weighing of the evidence. Decide for yourself if the results are worse than the possible cures.
They turned my son into a psychopath. That was not worth the risk and it took a full 2 months to get him out of that mess and another month to get him back to normal. There is a black box label on these things for a reason.
Is your child so bad off that you need to try? For some, the answer to that question is an emphatic yes. And they’d probably find help there. At least, I hope so.
But for most, the answer is probably no. There are much safer options out there with a better track record.
Whatever you do, DO YOUR RESEARCH.
Do not be a parent that doesn’t have the answers to your own questions. Find them. You don’t need to be a doctor to find out what the pros and cons are of a medication. You don’t need to be a doctor to go to PubMed, to read the research or even read the insert. Ask questions. Find the answers. Discuss with your doctor, don’t let your doctor simply tell you what to do. Have a real conversation with real questions, real answers and don’t be afraid to tell your doctor no or ask for time to think about it. Understand that doctors are people and they don’t actually know everything. Some doctors prescribe a medication simply because that’s what you’re supposed to do and they really don’t know anything about it. I had one doctor argue with me when I told her I was on oral hydrocortisone simply because she’d never heard of it. She was adamant that no such thing existed. Clearly I’m too stupid to 1.) know my own medication that I’d been taking for a year and 2.) read the damn label.
Don’t be bullied into choices you aren’t ready to make.
29 Mar 2012 Leave a comment
But don’t worry! Those numbers will drop down to nothing next year. Problem solved!
I also love how they always mention how early detection and early behavioral therapy are the keys to success. They always fail to mention biomed and when they do, it comes with a caveat or three.
Yes, early detection is good. Yes, behavioral therapy is good. But that’s not all that we have available to us and I’m tired of parents coming to me without a clue because no professional will nut up and tell them.
Have some balls, medical community. Fear of the truth doesn’t help find the truth. Grow a set so we can actually try to figure out which kids would benefit from which specific biomed treatments and we could recover more kids faster.
14 Mar 2012 1 Comment
How much longer are we going to pretend the medical community doesn’t have an agenda?
I don’t trust doctors. Some would call me paranoid. Some would say I’m overreacting. I wonder how much longer they’ll be able to hold on to that theory.
Legislators, supposed christians and state leaders, have sent a message. They don’t give a shit what you think. They don’t give a shit about the AMA. They don’t give a shit about ethics. And they sure as hell don’t give a shit if you trust your doctor.
It’s perfectly okay and encouraged to lie to patients.
Do you really believe it stops there?
This touches on many topics. I won’t even touch the religion in politics or the abortion issue as this is an autism blog but understand the entirety of my opinions for all three results in no one ever cares until it happens to them.
Pro-lifers believe abortion should be illegal but would they be okay when it gets to the point of arranged marriages? Not all pro-lifers believe that they shouldn’t be able to use birth control. Not every religious person will be okay with a doctor lying to them or others. Not every religious person will be okay with their bosses asking about their sex life.
How irrational are we now? No one cares until it happens to them. No one cares about our concerns or our children. No one wants to believe that this type of thing could actually happen in this country. The medical community couldn’t really be in the pockets of big pharma or the CDC. Politicians and money can’t really be what’s going on here. We can’t seriously be more concerned with reputations and appearance than the actual health of our children. There couldn’t possibly be an agenda.
Do you care yet?
It’s hard to believe I can still get angry even when I’m not surprised at all.
11 Mar 2012 Leave a comment
Fascinating story. I hope there’s more to come on this front.
08 Mar 2012 2 Comments
So terribly sad. With funding getting cut, I don’t see how this is going to get any better.
07 Mar 2012 Leave a comment
in And they call us crazy, Hypocrites and Idiots, In The News, Vaccines Tags: autism, autism court cases, autism research, autism treatment, GMC, MMR, research, science, vaccine court, Wakefield, Walker-Smith
Chief executive Niall Dickson added: “Today’s ruling does not however reopen the debate about the MMR vaccine and autism.
“As Mr Justice Mitting observed in his judgement, ‘There is now no respectable body of opinion which supports (Dr Wakefield’s) hypothesis, that MMR vaccine and autism/enterocolitis are causally linked’.
Interesting comment considering that by virtue of the ruling just said you’re all a bunch of frakking idiots for revoking his license for something you were never able to prove in the first place.
Good luck with that.
Time to let it go. The poster case against vaccines being ONE possible cause of autism is unraveling pretty damn fast. But it certainly has shown the GMC’s ass to everyone.
Yeah, clearly there’s no agenda here and everyone is just sooooo worried about the dangers of not vaccinating. *rolls eyes* I sincerely hope this makes people wake up and question just what the medical community is trying to hide.
Congratulations, John Walker-Smith. Your career was stained and ruined by a bunch of power-hungry nimrods but at least someone finally listened, even if it did have to be so many years later.